TWO families including one from Aydin, have achieved funding for their children who have the Spinal Muscular Atrophy (SMA) condition

As a result of the test performed in Dubai, it was determined that 3-year-old Alparslan Sarıboğa, who has SMA Type 1 patient in Aydın, could take the Zolgensma drug used in the treatment. Zolgensma gene therapy will be performed on Alparslan in the coming days.

Three years ago, twin children of Ömer Sarıboğa (33) and housewife Habibe Sarıboğa (32) were born. One of the twins, Alpaslan, who could not move his arms and feet when he was two months old, was diagnosed with SMA Type 1. 

The treatment process has started for Alparslan. An aid campaign was initiated with the approval of the Aydın Governorship in order to cover the cost of the medicine required for the treatment of Alparslan. 

The campaign attracted great attention throughout Turkey , especially in Aydın. All the money required for the treatment has been collected so far. Last month, with the money collected, Alparslan went to Dubai with his family for his treatment.

Alparslan is continuing treatment at Al Jalila Children’s Specialty Hospital in Dubai and is receiving the Zolgensma gene therapy.

Meanwhile, nearly 2 million TL has been raised for treatment money of 14-month-old İdil Ayşe Adakan, who also has SMA Type 1.

İdil Ayşe, daughter of teacher Zeynep Adakan and tradesman İbrahim Adakan, was diagnosed with SMA Type 1 disease about 1 year ago. A donation campaign was initiated, primarily by the Governorship of Kırklareli, to cover the treatment and medication expenses.

Launched in March, the campaign raised the money. Zeynep said: “I send my endless thanks to everyone who did not leave us alone on this path.”